Tag: Patient Advisory Committee

Patient Advisory Committee Spotlight: Tara Montgomery

Posted October 11, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Tara Montgomery is a trusted change leadership advisor and strategist who strives to connect the dots between healthy people and healthy democracies, bringing consumer and citizen perspectives to conversations about culture change in health care and other complex systems. Tara is driven by optimism about the power of collaboration to solve the world’s most challenging problems, having spent over two decades convening and partnering with US, UK, and international academic, cultural, scientific, and nonprofit institutions and leading strategic initiatives to advance public health, education, corporate social responsibility, and social change.


Patient Advisory Committee Spotlight: Dave Ellis

Posted October 11, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Dave Ellis is a national leader in providing trainings and facilitating conversations on the lasting impacts of ACEs and generational trauma. He shares his expertise with the State of New Jersey and coordinates statewide work related to ACE’s.

Patient Advisory Committee Spotlight: Claire Sachs

Posted September 09, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Claire is a federal policy analyst and patient advocacy blogger whose health history goes back to the early 1980s. Since then, she has managed a raft of serious conditions, both acute and chronic. She has also been a caregiver for both chronically ill and terminally ill family members. A few years ago, she realized that her experience with healthcare could be used to help patients, so she started a blog and started looking for ways to use her skills to make positive changes to the healthcare ecosystem. Claire has a BA in Government from Smith College and an MA in Political Management from George Washington University.

You can reach Claire Sach’s blog here.

Patient Advisory Committee Spotlight: Alma McCormick

Posted September 09, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Alma McCormick is a member of the Crow Nation and the Executive Director of Messengers for Health, a Crow Indian 501 (c) (3) nonprofit organization located on the Crow reservation in Montana.  Alma is a leader and a community activist for improved health and wellness amongst her people.  Her educational background is in Community Health and she furthered her education receiving a Bachelor’s of Science in Health and Wellness at the Montana State University-Billings. She has been actively involved in cancer awareness outreach and advocacy amongst Native American women in Montana since 1996. She has extensive experience in conducting community-based participatory research projects addressing various health needs of the Crow people while working in partnership with Montana State University-Bozeman. She has traveled nationwide to present at health conferences to share the program’s successes. She has also co-authored numerous peer reviewed journal articles. Alma’s passion for her work in community outreach stems from her personal experience of losing a young twin daughter to neuroblastoma cancer in 1985.

Patient Advisory Committee Spotlight: Janice Tufte

Posted July 07, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Janice Tufte resides in Seattle and is a patient collaborator involved with health systems research, evidence production, clinical practice quality improvement and human readable digital informed knowledge generation. She recently co-authored a paper currently under review with the Journal of Health Design that discusses the importance of collectively designing research and is working with AcademyHealth’s Paradigm Project in developing a new research prototype.  Learn more about Janice at www.janicetufte.com.

Patient Advisory Committee Spotlight: Susan Perez

Posted July 07, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Susan Perez’s research focuses on understanding consumers’ decision-making processes in order to develop healthcare policies, information, and resources to promote high value decisions. Dr. Perez has conducted studies that classified approaches to processing Internet health information among vulnerable populations; addressed statewide overuse of healthcare services; identified approaches for patients and providers to discuss the cost of care; developed a statewide campaign to address variation in C-section rates by working with both patients and hospitals; and illuminated consumers’ views of cost sharing, quality and network choice. Prior to joining the faculty at the California State University, Sacramento Department of Public Health, Dr. Perez completed a postdoctoral fellowship in quality, safety, and comparative effectiveness research and earned a doctorate in Nursing Science and Health-Care Leadership program at the University of California, Davis. 

Patient Advisory Committee Spotlight: Gwen Darien

Posted July 07, 2021

The Building Trust Learning Network has assembled a distinguished group of patient advocates, patients, caregivers and researchers on patient engagement to advise about how best to continue educating and engaging patients, caregivers and the general public about trust in healthcare. Over the coming months, we will be highlighting some of our members describing their experiences with trust in healthcare.

Gwen Darien is a longtime patient advocate who has played leadership roles in some of the country’s preeminent nonprofit organizations. As executive vice president for patient advocacy, engagement and education at the National Patient Advocate Foundation and the Patient Advocate Foundation, Gwen leads programs that link PAF’s direct patient services to NPAF initiatives to help ensure access to equitable, affordable, quality health care.

A three-time cancer survivor, Gwen came into cancer advocacy to change the experiences and outcomes for the patients who came after her and to change the public dialogue about cancer and other life-threatening illnesses.

Gwen serves on a wide range of program committees and workshop faculties. She is the Chair of PCORI’s Patient Engagement Advisory Panel and serves on the Board of Trustees of the USP. Gwen also writes about her experiences as an advocate and cancer survivor.